What is Epilepsy Xplained?
Medical jargon can be confusing, but, we take away that confusion through storytelling. Epilepsy Xplained follows Emily’s journey with Epilepsy through this illustrated flip-through story. Learn about Epilepsy, symptoms, treatments, support groups and the emotional roller coaster that comes with living with Epilepsy. Emily has opened up about her condition to help others learn about Epilepsy.
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Based on Emily’s journey with Epilepsy.
WRITTEN BY Professionals
Written by doctors for up-to-date and
PEER REVIEWED BY EXPERTS
Reviewed by doctors,
specialists and nurses.
INPUT FROM OUR COMMUNITY
Shared with a focus group of patients with
Epilepsy for first hand experience.
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Hi! I’m Emily. I’m 31 and I love animals, my work, art and craft stuff, mechanical things (mostly cars), and I used to love flying planes.
I was 28 when I got diagnosed with Epilepsy. One minute I was in a carpark on my way to the chemist for eye drops, the next minute I was in an ambulance being a little bit belligerent about answering questions, (“Do you know what your name is?” “Yes…” “What’s your name?” “You’ve got my ID, you know it!”).
I have one thing to say to everyone that experiences Epilepsy: It’s okay to freak out, be upset and angry, just don’t let that be a permanent state. Easier said than done, I know!
WHAT PEOPLE SAY
Living with Epilepsy, explained through storytelling.
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A COLLABORATIVE COMMUNITY EFFORT
A wide community of people have contributed to the development of Epilepsy Xplained. The starting point being the story of Emily, as well those of people who participated in our focus group. From this, medical experts, relevant medical bodies and medical institutions were all involved to create reliable and accurate information you can depend on. Along the way, the story has been reviewed by these experts and shared with the focus group to help evolve and optimise the content. Thank you to all of those who were involved!
Epilepsy Xplained for medical professionals
The Epilepsy Xplained story will be such a great help to people with epilepsy, as well as friends, family members and carers. In an effort to help explain this complex condition, medical professionals or organisations can order webkeys and flyers to help let patients know about this valuable learning resource. Order yours today!
Medicine X would like to thank their sponsor UCB Australia and charities Epilepsy Foundation and Epilepsy Action for their collaboration on Epilepsy Xplained.
UCB aspires to be the patient-centric global biopharmaceutical leader, transforming the lives of people with severe diseases. At UCB our sense of purpose is to help people suffering from severe central nervous system disorders lead normal, everyday lives. Our ambition is to offer them innovative new medicines and ground-breaking solutions that go beyond the drug. We are committed to enabling cutting-edge scientific research that is driven by patients’ needs.
To find out more about UCB Australia visit www.ucbaustralia.com.au/about-ucb
The Epilepsy Foundation was founded in May 1964. The organisation was formed so that individuals and families were not alone with their Epilepsy. Our ambition is to stop avoidable deaths from Epilepsy, to ensure children get a good education so that people get and keep jobs and so that people feel safe and connected. A good understanding of Epilepsy is the key to achieving these outcomes. The Epilepsy Foundation believes no one should go it alone with Epilepsy.
For more info about Epilepsy Foundation visit www.epilepsyfoundation.org.au.
Established in 1952, Epilepsy Action Australia undertakes research and advocacy, and delivers innovative, high quality services across Australia to optimise life outcomes for people with Epilepsy. The organisation’s aims are to increase Epilepsy awareness and understanding in the community, and facilitate self-management of Epilepsy for people with the condition.
If you have any questions or concerns regarding Epilepsy, please call Epilepsy Action Australia on 1300 37 45 37
To find out more about Epilepsy Action visit www.epilepsy.org.au.
ABOUT MEDICINE X
MEDICINE X IS MEDICINE XPLAINED BY DOCTORS, FOR PATIENTS
Medicine X translates complicated ‘doctor speak’ into an entertaining and engaging story – so that every person regardless of age, gender, culture and condition, can have access to medical information they can understand and relate to. Working as a doctor, Medicine X’s founder realised that many patients were confused about their diagnoses, and didn’t have a proper understanding of their conditions or treatments. There was a disconnect between the language that doctors use, and what patients understand. Because of this, many people feel hopeless and anxious at a very difficult time in their lives.
This is why Medicine X was created. We believe there is a better way. We believe all patients should feel informed and empowered so they can become engaged in their personal and medical decisions.
Medicine X connects the stories of real people with artists and medical experts, to turn complex medical information into stories that people can understand and relate to.
For more info about Medicine X visit www.medicinex.com